Friday, August 22, 2014

Kaylee Update: The last month has really been a struggle. We were not able to successfully combine the AC/DC CBD oil and the felbamate because the two can interact with one another. Since kaylee was quickly getting worse we decided to go solely with the Felbamate.. Two weeks ago we were blessed with 3 seizures free days. It seemed as though we had finally reached an effective dose of felbamate. However, the seizures came back, stronger and stronger. As a result, we continue to increase this darn felbamate with no results. At this point we have almost completely maximized the Felbamate and will soon need to consider other options. The future plan seems to be the Ketogentic Diet and/or possibly adding depakote to the felbmamate. I can't believe our little girl is only 13 months old and we have exhausted almost all treatment options.

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